Welcome to my little Kornor!

I hope you enjoy your stay while visiting me!

Monday, September 21, 2015

MPS Family Conference 2015

This past weekend I had a wonderful time at the National MPS Society Conference in Salt Lake City, UT.  I had the privilege to present with some amazing individuals about transitioning into adulthood with MPS.  We had a great turn out in our session with awesome questions.

#RareDisease #MPS #Advocacy

Wednesday, September 9, 2015

The Ryan Dant Story on 60 Minutes

Check out this great story about Ryan Dant. Ryan's dad, Mark, is the new National MPS Society Executive Director. After watching this 60 Minutes interview, you will see that that the organization is in really good hands!