Welcome to my little Kornor!

I hope you enjoy your stay while visiting me!

Sunday, June 28, 2015

Summer 2015

I realized I haven't posted for a long time. So I'll just share a fun picture of something I said five years ago! 

Thursday, December 11, 2014

HOPE for Isla and Jude

There are several different types of MPS.  Not all of them have treatments like mine.  This is a beautiful video about having Hope for a Sanfilippo treatment one day!  

Thursday, September 25, 2014

Runway of Dreams

I wanted to share with you all that I have been give the amazing opportunity to be an ambassador with the Runway of Dreams organization!

It has been a long time dream of mine to someday work within the fashion industry designing clothing and shoes for those who don’t fit the atypical standards of fashion. In recent years I thought this may be a dream I was never going to fulfill, but when I discovered the non-profit organization #Runway of #Dreams, I knew I had to be a part of what they were doing somehow. Now that I am on the team of Runway of Dreams I feel as though I can accomplish something I have dreamt of and now am able to help those with disabilities into the world of fashion. I 100% believe in what they stand for because of my personal experiences as a youngster and still today with fashion. Their goal is to entail the empowerment of children to embrace and celebrate their differences, rather than it be a source of shame, through an adaptive clothing line.

Monday, September 1, 2014

A Chapter Coming To An End...

Fall is slowly approaching as the days go by.  Soon the cooler air will arrive and the leaves will begin to turn to the vibrant colors of red, orange, and yellow.  And with the turning of colors November 3rd will draw near and on that day this year I will turn 30.  Wow….can you believe it!?!

As I think about turning 30 a feeling of bitter sweetness comes over me.  I am extremely proud of all the accomplishments I have already achieved in my lifetime so far, but feel there are still so many more that I am still yet striving for.  Some achievements I had hoped to have had already reached by the age of 30.  Then there are some that had never been a plan at all.  Through the years I have realized that some endeavors are up to me to make happen and some I have to leave in God’s hands for guidance, as difficult as that may be at times. 

Countless times I have stated how blessed beyond my means I am through the years with so many amazing people that have come into my life.  But, I just love how remarkable some people can make such a fantastic impact on ones life.  Those are the people that everyone needs to be surrounded by all the time.  We all deserve to have these types of people in our lives.  A great support network is what makes us as people keep ticking and helps keep us accountable.

In the last couple of years my confidences has grown tremendously as each day and experience happens.  I have so many people to “Thank” for empowering me to keep striving for my dreams and goals.  Failure is always a possibility no matter how hard one works.  The future can be a very scary as we head towards it, but without putting ourselves out there how can we grow and learn?  That is why I am incredibly hopefully for so many things as I look towards the future, despite the feeling at times of heading into unchartered territory.

But, until then I am going to enjoy being still in my late 20s as these last couple of months go pass by.